Third Neurologist Appointment Today Unfortunately, there still is no diagnosis

I am going to send you more tests and possibly refer you to other doctors. Honestly, trigeminal neuralgia is usually easier to treat than atypical facial pain

Dear MAX,

Hello Max, who is currently hiding in his cat tree 🌳 because I had to give medication for his current bowel trouble.

On Tuesday morning 🌄 I saw yet another neurologist. The appointment took me quite a long time to get one of my twin helper girls who took me. They charge a fee, but that is alright. They have been lifesavers. I noticed that I had a tough time getting out of her car and also for the short walk to the office. (which is frightening)

The doctors name is Dr. Reefat El-Said. I honestly did not have much hope for relief from this doctor either, I felt like I was just going through the motions again. However, Dr. El-Said was quite thorough and asked a lot of questions 🤔  I also had a lot of information for him to go over.

I had “normal” bloodwork from the overnight stay in the hospital 🏥 I also had three MRIS (which were ordered by the “pain” arthritis doctor)

After Dr. El-Said had finished asking me questions about my condition, He questioned me about my weight, which unfortunately has been dropping. The doctor then examined me quickly and told me that I definitely still had TMJ on the left side of my jaw.

Fortunately, that’s when one of my symptoms came up, the mystery of why toothpaste, pills, or any kind of food aggravated the pain 😢

Suddenly, the three people in the room began nodding their heads 😳  They mentioned that this was a symptom of Trigimina Neueolgia. So, instead of prescribing Lyrica, he prescribed a low dose of tegretal.

Unfortunately, then came the words 😕 I dreaded. The doctor said he was going to send me for more tests and that he did not have a diagnosis for me now. When I heard those words, I felt sick to my stomach because I had heard them so many times before.

Dr. El-Said wants me to come back in six weeks, which is actually on my 49th birthday with the tests finished

The doctor ordered another Mri.this time of my lungs. As well as a specialist blood test.. If he found nothing, he was again going to refer me to someone else

I felt the same sinking feeling 😕 of defeat when we left the office. As I have so many times before. The unfortunate feeling of complete hopelessness.