I was back in the hospital 🏥 over the weekend, unfortunately due to severe pain as well as severe constipation. I did not necessary want to go, I called an ambulance to check me out but unfortunately was forced to go with them (something I didn’t realize they could do)
I have been having issues with medications for pain. The hospital actually didn’t really prescribe anything except torridal (I hope that’s spelled correctly) which is a very strong NSAID (like advil) used for inflammatory purposes. It actually has stopped working for my pain but I do not have very many other options. I do have some leftover vicoden as well as oxycontin from other visits…
It is a mystery why they do not work, however I still take the torridal which is consipating and very hard on the stomach. It is due to this that I am in a endless cycle if I don’t take the medicine the pain is to great but it causes severe constipation and then I right back where I started.
On another note the hospital wanted to try the drug neurotin for my pain. However, I only took it for a few days as the sedation effect was so great, I could barely lift my head from the pillow. They want me to continue the drug but I have not quite decided. I started with 100 mg and it would take a much larger dose to be helpful and would also take a great many weeks to find out if it is effective 😪
Thirdly, the doctors at the hospital once again blew off my pain. (Something I am no stranger too) They neurologist there was quite nonchalant and frankly callous (telling me to go find a pain management doctor because my tests keep coming up negative) He had no answers for me (neither did the head doctor who I told about the pain being so bad I was having a tough time functioning) He said take the neurotin and that should take care of it and he left the room.
After going on 4 years of this I don’t quite understand why just because your scans come back negative the doctors don’t believe that you are still in great pain (it’s a big mystery) 😪
Unfortunately, as of now the cycle seems to be a revolving door, constant hospital stays, consipating medicine (which doesnt work) and negative scans which doctors sont take seriously)
If any of my readers have experienced anything like this please feel free to comment.
God bless yall thank you for reading and have a wonderful day
Name the most expensive personal item you’ve ever purchased (not your home or car).
I would imagine that I’ve spent a massive amount of money on my teeth for crowns and cavities etc..unfortunately 😬 which possibly could all be undone due to my inability to keep good dental hygiene due to chronic pain..
In the past, I also spent quite a lot on some tattoos. Before my chronic pain hit my ex-boyfriend and I went down to Los Angeles so that I could get a memorial tattoo for my mother 👩 In the image of a ceramic angel that I gifted her.
Earlier, in my 20s I got several Kanji tattoos on my legs and ankles. Kanji are Japanese lettering. I have a very large one here on my leg.. Unfortunately the message is not a very positive one. . It reads Empty Soul… The one on the ankle is more positive and reads courage..😃
I am still in the hospital as they try to find a medication that can somewhat control my pain as I await transfer 🏥 to a rehab facility. So far, they have not had much luck with pain control, and I am concerned that I will not have much success if they do not.
However, I have been away from Max the Cat for almost two weeks, and we have rarely been separated, I know that for those of you who have pets, you would most likely feel the same way and I greatly empathize. I imagine that Max (my pet) and I am sure your pet, if you were in a similar situation, would want you to continue to work hard and not give up so you can come home to them 😉
Unfortunately, today is found out that his current pet sitter has not been giving him the correct diet, and I am concerned that he could have been harmed, so learning this definitely does not help the issue, but I will just have to trust.
Just out of curiosity… if anyone would like to comment. How do you feel, or how do you cope when you miss your pet?
Thank yall so much for reading 📚 and have a wonderful day.
Being in the emergency room last week sure was not fun 😕 especially when it appears I came out worse than when I went in 😪
My initial reasons for going were not for my facial pain (because I knew there was nothing they could do for that) or for my stomach issues, something that I have also dealt with for most of my life (severe Ibs with constipation) They were for weight loss, fatigue and some female issues
After being home now for three days since being under observation for two days and admitted for two days, I only discovered a few things
One, I can become hypoglycemic quite quickly, after my very first low blood sugar attack, in which my sugar was 57, and I felt as though I was going out of my body. 😪 and through the ceiling (extremely new and frightening feeling) 🫣
Two, the “new pain pills the doctor gave me (more opiates) morphine and oxytocin have made me so constipated that I still can not eat at all. They also do not relieve the facial pain 😪
Three, take heed when the staff says you have an ileus ( the intestines stop working properly leading to a blockage in the digestive tract) vs having severe constipation because having a tube put down your throat and into your stomach while awake is quite excruciating as well as, in my case, quite. unnecessary.
Four, I did consume my first actual “meal” in likely years. It was a creamy and gooey CHEESE OMELET with some breakfast potatoes 🥔 I don’t remember when I have tasted something, so yummy 😋
I also consumed my first real sugar in some dannon yogurt 😋 and some fruit 😋 it tasted like heaven 😋
Five, Unfortunately, however, in doing so, I was reminded how much these foods trigger pain flare-ups and was again reminded that these things should never be consumed again. 😢
Now, I have been home for three days, and my stomach is much worse (i.e., I am unable to eat a bite), and the reasons I initially went in, the unexplained weight loss, the extreme fatigue, and the female issues are no different.
I have not been able been able to to cleanse my stomach of any waste products whatsoever since I left the hospital 😪
Laxatives and fiber do not work for me. and I am beginning to fear having to go back and developing an actual ileus (for which you need surgery, and that was the reason for the stomach tube)😪
Why couldn’t they have corrected this when I was there? It’s been a really rough two weeks. I just pray things might get better 🙏
Hi, my name is Anna, I am in my 40s, and I suffer from chronic pain in my face. Unfortunately, it has been going on for years.
In this journal, I write about my unsuccessful trips to doctors, my frustrations, and my fear as well as provide some informative information, some quirky daily promts some cute stories as well as some serious ones all with the hope for a normal life again one day.
Currently, after my last neurologist appointment, I still have not been diagnosed. At this point, after suffering for so long, the constant pain has worn me down. I am no longer able to do most activities,
I am not able to drive anymore, so I have lost my independence. I have lost my individually as well, and I grieve for all these things. At this point it has become so disabling that I am not able to eat, or really take care of myself, I am in and out of the emergency room, and concerned that I will be removed from my current apartment and sent to a nursing home without Max the cat 🐈
Any type of chronic pain is a real condition and one of the number one reasons people visit their doctors. I hope you, as the reader, are able to understand this issue better and hopefully be able to sympathize with others….
Thank you 😊 for visiting, and please feel free to subscribe!
Dear Max, sometimes I get really low about things. I don’t mind living alone at all. In fact, I rather enjoy it. It’s quite peaceful and quiet, I try to keep my spirits up, but on the days that I feel like im sinking into a bit of a depression 🫥 I sure wish you could talk.
When we left off, Max and Anna were walking down an isolated train track 🛤 in the Smokey Mountains of Tennessee. They had disappeared 😕 into the fog 🌁 searching for their next adventure.
Once the fog had dissipated, and the sun’s 🌞 rays began to shine through the thick mystic green mountains, ⛰️
Max and I were getting hot and tired. We both sat down on the wooden slats of the railroad tracks. 🛤’What are we going to do now, Max?’ We have been walking on the tracks for so long now without seeing a single thing.
Earlier today, we had both reached into our quilted magical knapsacks, and to our shock, they were empty. ‘We have to find some food soon,’🍔 Max nodded. I wiped the sweat from my forehead, and I sure could use a bath. 🌊
After we had rested, we both nodded in agreement that we should keep going after all.🛤
Even though we were hungry, it certainly was a beautiful day.🌤 The birds🐦 were chirping, the bees🦥 were buzzing, and the sky was a clear blue with white fluffy clouds as far as the eye could see.⛅️
No sooner had we gathered our knapsacks than we could hear a sound in the distance🛤 ‘Look, Max,’ I said, pointing to some water cascading down into small pools and gathering under the rocks. ‘It must be coming from the top of the mountain.’🌳
Just then, the clouds began to thicken into a misty white fog that shimmered in the summer sun.🌞 Up ahead, the sweet, succulent smell of yellow and white honeysuckle blossoms
We followed the glorious scent until we finally reached a bridge, which led to the mouth of a cave, we both peeked inside. ‘Max, this looks like something out of a fairytale,’ I said aloud. We cautiously stepped onto the bridge, and as soon as we did, a refreshing waft of cool air began to surround us.
Down below was a deep, crystal-clear, blue-green lake. Up above, there were stalactites of shimmering, clear white quartz. As we got closer to the other side of the bridge, we saw more stalactites. Stalactites of every color of the rainbow: purple, pink, blue, and white.
they shined just like rubies or emeralds. What is this place? “I said aloud to Max, I’ve never seen anything like this.
Once we reached the end of the bridge, we stepped onto a small island with the lake surrounding us. To our right and off to the side, we saw a small, old, brown wooden pier; we could hear it creaking and cracking with each lap of the blue-green water. Along with an old wooden rowboat that was tied to it.
“Hmm, odd that this is here,” I said out loud to Max. “I wonder where it came from?” “Let’s take a look.” We both cautiously stepped inside as the boat creaked and cracked beneath us. I rowed out towards the middle; it was then that we could see some very large fish.
Our mouths watered at the sight below. “Boy, I sure wish we could catch some. Perhaps our magical knapsacks will get their magic back if we have something to fill them with. I wonder how we can. Perhaps I’ll make a wish.”
The fish didn’t seem like boring old normal ones; they almost seemed human as we watched them jumping, splashing, and playing. They actually seemed to be laughing. “They sure are having fun, aren’t they?”
Not too long after that, I seemed to notice that my knapsack felt much heavier. “How about yours, Max?” He nodded. “Perhaps my wish came true.”
Our stomachs were growling, so we opened the bag, and inside, there were plates and plates of steaming, crispy fried catfish. There were even side dishes of fluffy homemade biscuits slathered in butter and big heaping cups of freshly picked green beans. “The knapsacks are magic again!”
All they needed was some rejuvenation, kindness, and love from this special place, just like we did when we first stepped inside.
With our bellies full, we gathered our things together. We could still smell the sweet scent of honeysuckle blossoms as we walked back towards the bridge. Above us, the stalactites and stalemates suddenly began to twinkle and shine as if they were happily telling us goodbye and wishing us luck on our journeys
We waved back sad to leave this magical magnificent special place.
See what happens if you just believe Max nodded, jumped into arms, and we gave each other a huge hug
We went back across the bridge content and were happy and thankful for the help.
As we got to the mouth of the cave, we felt felt warm and fuzzy all over, just like being wrapped in the comfort and security of a familiar blanket.
When we stepped back outside onto the train tracks with our knapsacks now full of food, dusk had begun to fall in the mystic mountains. The sun was setting below in soft pinkish colors.
The fireflies were illuminating the sky with a golden light, and the cicadas were buzzing in the trees. The fog once again
began to creep in around us. I suppose we should find somewhere to sleep soon, as.we continued down the tracks we I said out loud.
We both turned around to take one last look and we couldn’t see the magnificence cave anymore! It must have disappeared I exclaimed, ready to reappear to the next set of weary travelers.
Unfortunately, today is an especially bad pain day for me, and it has been quite difficult to write. However, I really enjoy it 😀 so I push on.
Now, I suppose I just have to get some rest and try some deep breathing exercises and use lots of ice. I dont think I can do the small chore of taking the garbage out today.
I must say however 😪 if only Dr. El-said had been able to prescribe something for pain, but unfortunately, pain medications like vicoden are so tightly controlled in Florida that even he can not prescribe them. 😪
I lived in Northern California for about 12 years. It was probably around 8 or 9 years ago ago, but I continue to marvel about how much easier it was to get pain 💊 medications when you had a real pain condition like I did back then also, It was not facial pain but a woman’s issue.
I suppose it was easier because there are a great deal of pain doctors back there. Instead of the only one here in my area.who I have already visited..
We waved back sad to leave this magical magnificent special place.
LIVING WITH CHRONIC PAIN WITH ANNA AND MAX 