LIVING WITH CHRONIC PAIN WITH ANNA AND MAX

Tag: doctor

  • An Endless Cycle…Hospital, Pills,  Doctors not taking pain seriously 💊

    Dear Readers,

    I was back in the hospital 🏥 over the weekend, unfortunately due to severe pain as well as severe constipation. I did not necessary want to go, I called an ambulance to check me out but unfortunately was forced to go with them (something I didn’t realize they could do)

    I have been having issues with medications for pain. The hospital actually didn’t really prescribe anything except torridal (I hope that’s spelled correctly) which is a very strong NSAID (like advil) used for inflammatory purposes. It actually has stopped working for my pain but I do not have very many other options. I do have some leftover vicoden as well as oxycontin from other visits…

    It is a mystery why they do not work, however I still take the torridal which is consipating and very hard on the stomach. It is due to this that I am in a endless cycle if I don’t take the medicine the pain is to great but it causes severe constipation and then I  right back where I started.

    On another note the hospital wanted to try the drug neurotin for my pain. However, I only took it for a few days as the sedation effect was so great, I could barely lift my head from the pillow. They want me to continue the drug but I have not quite decided. I started with 100 mg and it would take a much larger dose to be helpful and would also take a great many weeks to find out if it is effective 😪

    Thirdly, the doctors at  the hospital once again blew off my pain. (Something I am no stranger too) They neurologist there was quite nonchalant and frankly callous (telling me to go find a pain management doctor because my tests keep coming up negative) He had no answers for me (neither did the head doctor who I told about the pain being so bad I was having a tough time functioning) He said take the neurotin and that should take care of it and he left the room.

    After going on 4 years of this I don’t quite understand why just because your scans come back negative the doctors don’t believe that you are still in great pain (it’s a big mystery) 😪

    Unfortunately, as of now the cycle seems to be a revolving door, constant hospital stays, consipating medicine (which doesnt work) and negative scans which doctors sont take seriously)

    If any of my readers have experienced anything like this please feel free to comment.

    God bless yall thank you for reading and have a wonderful day

    Anna and Max the Cat 🐈 😻

  • CHEESE OMELET 🧀 AND WHAT I “DID”AND “DIDNT LEARN IN THE EMERGENCY ROOM LAST WEEK

    Letter to Max

    Dear Max,

    Being in the emergency room last week sure was not fun 😕 especially when it appears I came out worse than when I went in 😪

    My initial reasons for going were not for my facial pain (because I knew there was nothing they could do for that) or for my stomach issues, something that I have also dealt with for most of my life (severe Ibs with constipation) They were for weight loss, fatigue and some female issues

    After being home now for three days since  being under observation for two days and admitted for two days, I only discovered a few things 

    One, I can become hypoglycemic quite quickly, after my very first low blood sugar attack, in which my sugar was 57, and I felt as though I was going out of my body. 😪  and through the ceiling (extremely new and frightening feeling) 🫣

    Two,  the “new pain pills the doctor gave me (more opiates) morphine and oxytocin have made me so constipated that I still can not eat at all. They also do not relieve the facial pain 😪

    Three, take heed when the staff says you have an ileus ( the intestines stop working properly leading to a blockage in the digestive tract) vs having severe constipation because having a tube put down your throat and into your stomach while awake is quite excruciating as well as, in my case, quite. unnecessary.

    Four, I  did consume my first actual “meal” in likely years. It was a creamy and gooey CHEESE OMELET with some breakfast potatoes 🥔  I don’t remember when I have tasted something, so yummy 😋

    I  also consumed my first real sugar in some dannon yogurt 😋 and some fruit 😋 it tasted like heaven 😋

    Five, Unfortunately, however, in doing so, I was reminded how much these foods trigger pain flare-ups and was again reminded that these things should never be consumed again. 😢

    Now, I have been home for three days, and my stomach is much worse (i.e., I am unable to eat a bite), and the reasons I initially went in, the unexplained weight loss, the extreme fatigue, and the female issues are no different. 

    I have not been able been able to to cleanse my stomach of any waste products whatsoever since I left the hospital 😪

    Laxatives and fiber  do not work for me. and I am beginning to fear having to go back and developing an actual ileus (for which you need surgery, and that was the reason for the stomach tube)😪

    Why couldn’t they have corrected this when I was there? It’s been a really rough two weeks. I just pray things might get better 🙏

    Meowmmy ❤️

  • Second appointment with Dr. El-Said (neurologist today) (birthday today).

    Dear Max,

    In short, the appointment did not go well at all. Exactly what I expected to happen, unfortunately, did.

    I don’t suppose it is not necessary to write a long letter about what happened 😕 at the office, because it was quite simple and something that has happened to me with every doctor I have seen for my facial pain.

    Dr. El-said said that he only treated Trigimina Neueolgia, and since the medication he gave me did not work, once  again I heard the dreaded words, there’s nothing more I can do, I will refer you to a headache specialist and a Tmj surgeon 😪

    Quickly on a side note, I did learn from the bloodwork that I got done at Quest Labs not too long ago, indicated a vitamin B-12 deficiency, so I was  prescribed some B-12 shots to give myself at home. I hope that  I will be able to administer those correctly.

    Unfortunately, when I was weighed, my weight was 84 pounds and not 88 (so I have lost 4 pounds within only two months) 😫 I am not dieting. I am only constantly losing, and this has me very concerned 😟  It is unfortunately an indicator of a very serious illness 🤒 for months and months I have been researching other issues that could cause this symptom, unfortunately most all of them lead to one. (But I just keep telling myself it’s because of the pain that I am barely eating because when I do, the pain is excruciating)  so im not getting many calories 😪)

    But that is neither here nor there. Today is my birthday 🎂 and I was hoping and praying for some good news 🙏 for at least some pain medication when it just becomes too unbearable   but unfortunately, it was not to be.

    I am debating whether to completely give up or not. because I am just so tired 😫 because again I have to start all over and I dont know if i really want to do that.

    For three years, I have been going to doctors, having all kinds of tests, everything with no result.

    I am not quite as depressed this time about this as I was with the other doctors because, like I mentioned, it was expected, but it didn’t particularly make for a very good birthday 😪

    Sincerly Meowmmy 😺