LIVING WITH CHRONIC PAIN WITH ANNA AND MAX

Tegretal that Dr. EL-SAID gave me “does not work”

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Anna

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On May 22, I went to see my third neurologist, Dr. El-Said. Dr. El-Said prescribed some tegretal or Carbamazepine because I had mentioned to him that it was very painful to eat or to brush my teeth.

Dr. El-said then mentioned that this  sounded  like trigeminal neuralgia, possibly. He also said that the medication would work immediately for my pain if this was the issue.

I went home 🏡 and was quite doubtful. Unfortunately, I had reason to be. I took the medication 💊 and it did not work at all. The medication actually seemed to make the pain worse. Once again, I was so disappointed 😞  but unfortunately, this was something I was used to.

Unfortunately, once again, it seems that I am living in the movie Groundhog Day (where every treatment does not work).

Dr. El-said wants a couple more tests. Another blood test and another mri. Honestly, I do not know what doing more tests will accomplish (since I had already given him quite a great deal of test results), and unfortunately, Mris are expensive

Somedays, I even questioned myself, wondering if I am even on the right track. The only thing that I have been diagnosed with is spinal stenosis in my neck and upper shoulders by Dr. Jason Song (I have an entry further down about him) and the arthritis injections that he gave me)

Unfortunately, the spinal stenosis is also quite painful.. (perhaps I should move towards the arthritis route) It has also been told to me quite frequently that I need a headache specialist instead of a neurologist. During my own research for a “headache specialist,” I haven’t found one online at this particular time.

😪 Sadly, I feel quite tired 😫 of all these things as well as more confused as ever.

Comments

5 responses to “Tegretal that Dr. EL-SAID gave me “does not work””

  1. cat9984 Avatar
    cat9984

    I’m so sorry the tegretol didn’t work. I’m allergic to it, but I too was told that it was the best drug. Have you been to a pain clinic? Sometimes their approach is a little more holistic, looking at the whole body rather than just the part that hurts the worst.

    Liked by 1 person

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    1. Anna Avatar
      Anna

      Hey there 👋 well I reckon that means I don’t have trigeminal neuralgia ( i can never spell that right) oh dear well I have been to a pain doctor who diagnosed me with spinal stenosis and gave me arthritis injections. Honestly he was a jerk 🙄 maybe yall have more doctors up where you live? Oh dear i don’t know! I hope you and the kitties have a great day 😀

      Liked by 1 person

      Reply
      1. cat9984 Avatar
        cat9984

        Thank you. Actually, we are very lucky in SE Michigan. We have three excellent health care systems and two more that are really good. My brother lives in Winter Springs, FL and says there are fewer options around him.

        Liked by 1 person

      2. Anna Avatar
        Anna

        Hey there 👋 my friend wow maybe I should move towards Michigan! Actually winter springs isn’t to far from me. Apparently we have one large health care system and if your doctor doesn’t come from it most likely they won’t take my insurance 😒

        Liked by 1 person

      3. cat9984 Avatar
        cat9984

        Yeah, that’s what my brother said. He’s been installing floors for years as a contractor. He can only afford health care intermittently, and he’s not eligible for Medicaid when he’s not working.

        Liked by 1 person

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